In her 60-minute presentation, Professor Charo addresses Ethical Challenges in Trials of Human Genome Editing and Gene Therapy, as gene therapy and genome editing clinical
trials involve ethical challenges not always found in other areas of research.
At the conclusion of this forum, participants will be familiar with:
- the difficulties posed by the need for long-term—even lifetime—follow-up of research subjects,
- the opportunities and ethical challenges of in utero somatic therapy,
- the challenge posed to insurance systems by therapies with high upfront costs despite lifetime savings, and the dual-use concerns surrounding epigenetic editing.
Alta Charo, J.D., Warren P. Knowles Professor Emerita of Law & Bioethics at the University of Wisconsin School of Law